People page
Alisha
Sweetlele831@aol.com
Age:  20
City/State:  Covington, TN
Type:  Intrameduallary Ependymoma, C5 - T2
Hospital:  Methodist Central, Memphis, TN
Neurosurgeon:  Dr. Bruce Frankel
Surgery:  July 2002
Radiation/ Chemo:  No

Alison
alison@bradish.orangehome.co.uk
Age of surgery:  41
City/State:  England, Staffordshire
Type:   Intramedullary Ependymoma, C1 -C3, Grade 2
Hospital:  North Staffs
Neurosurgeon:  Mr Price
Surgery:  Jul 04 & Nov 4
Radiation / Chemo:   No

Ann Marie
Ams1553@aol.com
Age:   49
City/ State:  Elmsford, NY
Type:  Intramedullary Neurenteric Cyst, T2 - T5
Hospital:  NYU Medical Center, NY/NY
Neurosurgeon:  Dr. Paul Cooper
Surgery::  3/14/2001 and 8/28/2002
Radiation / Chemo:  No

Baylor
bcockre2000@yahoo.com
Age of surgery: 34
City/State: Dallas, TX   
Type: Intramedullary Ependemoma, C1-C2
Hospital: Zale Lipshey
Neurosurgeon: Dr. Howard Morgan/Bruce Mickey
Surgery: July 2005
Radiation/ Chemo: No

Becky
erb 1258@aol.com
Age:  42
City/State:  Pensacola, FL
Type:  Sub - Ependymoma,  C4 - T4
Hospital:  Ochsner Clinic, New Orleans, LA
Neurosurgeon:  Dr. Edward Connely
Surgery:  August 1990
Radiation/ Chemo:  No

BethAnn
huntbethann@gmail.com
Age:  at time of surgery 44 now 49
City/State:  Holland , MI
Type:  Sub - Hemangioblastoma T1-T2
Hospital:  Holland Community Hospital
Neurosurgeon:  Dr. David Lowry
Surgery:  First 6/22/04 Second 7/8/04
Radiation/ Chemo:  No

Bill
billanschell@mindspring.com
Age of surgery:  46
City/State:  Seattle, WA
Type:  Intermedullary Ependymoma, T10 - T11
Hospital:  Harborview
Neurosurgeon:  Dr. Richard Ellenbogen
Surgery:  September 2005
Radiation/ Chemo:  No

Brent
mbchesn@insightbb.com
Age:  30
City/State:  Louisville, KY
Type:  Intramedullary Myxopapillary Empendymoma T8 -L4
Hospital:  M.D. Anderson, Houston, TX
Neurosurgeon:  Dr Ziya Gokaslan (now John Hopkins)
Surgery:  2002
Radiation/ Chemo:   Yes - Radiation

Brittany
smoker_of_bowls@yahoo.com
Age:  21
City/State:  Fort Smith, AR
Type:  Schwannoma T4-T6
Hospital:  University of Medical Sciences Little Rock, AR
Neurosurgeon:  Dr. Khrist.
Surgery:  May 24th, 2006
Radiation/ Chemo:  No

Carlos
concepcioncr@hotmail.com
Age at surgery: 37
City/State: San Diego, CA
Type: Grade 2 Intramedullary Ependymoma at T4-T6
Hospital:  Naval Medical Center San Diego, CA
Neurosurgeon: Dr. Cyril T. Sebastian
Surgery:  Sep 2004
Radiation/ Chemo:  No

Carol
Ccsings@aol.com
Age at surgery:  72
City/State:  Monroe, Louisiana
Type:  Fibroma, C3 - C5
Hospital:  Georgetown University Hospital
Neurosurgeon:  Dr. Henderson
Surgery:  April 2005
Radiation/ Chemo:  Yes - Radiation

Cheryl
PTLDKC@aol.com  
Age at surgery:  44
City/State:  Portland, Oregon
Type:  malignant Myxopapillary Ependymoma T10 - L5
Hospital: Providence St. Vincent
Neurosurgeon:  Dr. Michael Calhoun
Surgery:  1999
Radiation/ Chemo:  Yes - Radiation

Darren
dtgsept2006@yahoo.com
Age:  36
City/State:  Hendersonville, TN
Type:   Ependymoma, L1-L5
Hospital:  Nashville Memorial, Madison, TN
Neurosurgeon:  Dr. Verne Allen
Surgery:  1986 & 1987
Radiation/ Chemo:  Yes

Darin
nehoenirad@earthlink
Age:  33
City/State:  Culver City, CA
Type:  Cavernoma, T11 T12
Hospital:  Beth Israel Medical Center, NY
Neurosurgeon:  Dr. Fred Epstein
Surgery:  December 2000
Radiation/ Chemo:  No

Dave
5dmarsden@mchsi.com
Age: 52
City/State: Cedar Rapids, Iowa.
Type: Intramedullary Ependymoma C2-C3 1.6 cm.diameter
Hospital: Johns-Hopkins- Baltimore, Maryland.
Neurosurgeon: Dr. George Jallo.
Surgery:  February 2005
Radiation/ Chemo: No

David
Dga1@bellsouth.net
Age: 41
City/State: Lawrenceville GA
Type: Intradural Extramedullary Myxopapillary Ependymoma
Hospital: Gwinnett Medical Center, Lawrenceville
Neurosurgeon: Dr. Don Penney
Surgery: Sept. 2004
Radiation/ Chemo: No

David M.
dm@aimi.org.uk
Age:  64
City/State:  Manchester, England
Type:  Ependymoma
Hospital:  Walton Hospital, Liverpool
Neurosurgeon: Mr. Sutcliffe-Kerr
Surgery:  Lumbar laminectomy, 1959
Radiation/ Chemo:  Megavoltage Radiotherapy

DeDe
dede.aragon@gmail.com
Age: 48
City/State: Bluffdale, UT
Type: Intrameduallary Ependymoma T7-T10
Hospital: Intermountain Healthcare
Neurosurgeon: Dr Peter Maughan
Surgery: July 30, 2009
Radiation/Chemo:  No

Deepa
Email:  Not listed
Age:  31
Country:  India
Type:  Arachnoid - Cyst,  T2, T4
Hospital:  Army Hospital, R & R, Delphi, India
Neurosurgeon:  Dr. Lt. Col. Vk Baatish
Surgery:  December 1977
Radiation/ Chemo:  No

Deirdre
deirdreamies@hotmail.com
Age:  29
City/State:  Dunedin, New Zealand
Type:  Schwannoma T10 - L2, schwannoma regrowth at T9
Hospital:  Dunedin Public Hospital, Dunedin, NZ
Neurosurgeon:  Dr. Grant Gillett,  Dr Suzanne Jackson
Surgery:  July 1998 & January 2002
Radiation/ Chemo:  No

Donna
dmcervantez@gmail.com
Age:  55
City/State:  Tucson, AZ
Type:  Intrameduallary Ependymoma, T10 - T12
Hospital:  Northwest Medical Center Tucson, AZ
Neurosurgeon:  Dr. Thomas Scully
Surgery:  July 12, 2007
Radiation/ Chemo:  Radiation

Doug
mimiretire2000@yahoo.com
Age:  59
City/State:  Nashville, TN
Type:  Ependymoma,  T4 - T6
Hospital:  Baptist Hospital, Nashville, TN
Neurosurgeon:  Dr. Harold Smith
Surgery:  December 2000
Radiation/ Chemo:  No

Ed
statons4@bbtel.com
Age:  Not listed
City/State:  Elizabethtown, KY
Type:  Schwanoma,  T - 12
Hospital:  Beth Israel Medical Center, NYC
Neurosurgeon:  Dr. Fred Epstein
Surgery:  September 2000
Radiation/ Chemo:  No

Eldon
elucas2340@aol.com
Age:  61
City/State:  North Lawrence, OH
Type:  Unknown,  T3 - T6
Hospital:  Not listed
Neurosurgeon:  None
Surgery:  None
Radiation/ Chemo:  No

Gary
gary.topple@fibropower.com
Age:  47
City/State:
Type:  Intradural Meningioma, C6
Hospital:  Addenbrooks, Cambridge, England
Neurosurgeon:  Professor Rodney Laing and Rupert Kett-White
Surgery:  June 2003
Radiation/ Chemo:  No

Gina
mimbi@aol.com
Age:  22
City/State:  Highland, CA
Type:  Astrocytoma/Oligodendroglia, T10 - T11
Hospital:  Loma Linda Univ. Hospital University of CA.
Neurosurgeon:  Not listed
Surgery:  1993 and 1995
Radiation/ Chemo:  No

Holly
wheeliegirl@prodigy.net
Age:  38
City/State:  Fullerton, CA
Type:  Lipoma & Schwanoma, T2 - T5
Hospital:  St. Joseph's Orange CA & St. Juden, Fullerton, CA
Neurosurgeon:  Dr. Jhinho Kim
Surgery:  1996
Radiation/ Chemo:  No

Ida
ida_bostian@yahoo.com
Age:  35
City/State:  San Jose, CA
Type:  Myxopapillary ependymoma C7, T2, T5, T6, T9-T11, L1-L6
Hospital:  University Medical Center, Salt Lake City, UT
Neurosurgeon:  Dr. Randy Jensen
Surgery:  April 2000 & July 2000
Radiation/ Chemo:  None

Jack K.
jackkivik@rogers.com
Age:  50
City/State:  Ontario, Canada
Type:  Intramedually Ependymoma,  C4 - C6
Hospital:  St. Michael's Hospital, Toronto, Canada
Neurosurgeon:  Dr. W. Tucker
Surgery:  November 2002    80% resection
Radiation/ Chemo:  No

Jennifer
Email:  Not listed
Age:  33
City/State:  Calgary, Canada
Type:  not yet determined, T1 - T12
Hospital:  Beth Israel Hospital, NY
Neurosurgeon:  Dr. Fred Epstein
Surgery:  None
Radiation/ Chemo:  No

Joanne
Joanne.Jaeger@inginvestment.com
Age:  42
City/State:  Yonkers, NY
Type:  Solitary Fibrous Ependymoma T2
Hospital:  Beth Israel North, NY
Neurosurgeon:  Dr. Fred Epstein
Surgery:  June 1999
Radiation/ Chemo:  No

Jody
Jody@jodygomez.com
Age:  40
City/State:  Murrieta, CA
Type:  Myxopapillary Ependymoma L4-5 & S1
Hospital:  Kaiser Permanente, Lakeview Med Ctr, Anaheim, CA
Neurosurgeon:  Dr. William So
Surgery:  February 1990
Radiation/ Chemo:  No

Joel
wisnerj@unlv.nevada.edu
Age: 51
City/State:  Las Vegas, NV
Type:  Astrocytoma,  C2 - C5
Hospital:  Johns Hopkins Medical Center, Baltimore, MD
Neurosurgeon:  Dr. George Jallo
Surgery:  February 2004
Radiation/ chemo:  No

Jonathan
kibrickj@earthlink.net
Age at surgery:  37
City/State:  Mill Valley, CA
Type:  Atypical intradural schwannoma, L5-S1
Hospital:  UCSF, SF,CA
Neurosurgeon:  Dr. Phillip Weinstein
Surgery:  November 2003
Radiation/ Chemo:  No

John
finanj@msn.com
Age:  34
City/State:  Glen Ellyn, IL
Type:  Ependymoma,
Hospital:  Loyola Medical Center, Maywood, IL.
Neurosurgeon:  Dr. Russ Nockels
Surgery:  August 2003
Radiation/ Chemo:  No

Karen
kmsa53@comcast.net
Age:  47
City/State:  Greensburg, PA
Type:  Astrocytoma,  C2 - T3
Hospital:  Beth Israel Medical Center, NY
Neurosurgeon:  Dr. Fred Epstein
Surgery:  1992
Radiation/ Chemo:  Yes - Radiation

Karja
karjaelliot@aol.com
Age:  36
City/State:  Not listed
Type:  Intramedullary Ependymoma, L3-L5 (Malignant)
Hospital:  Hackensack Hosp., NJ&Memorial Sloan Kettering, NYC
Neurosurgeon:  Not listed
Surgery:  1996
Radiation/ Chemo:  Yes

Kathy
Email:  Not listed
Age:  40
City/State:  Reno, Nevada
Type:  Schwanoma,  T12 - L1
Hospital:  Wasoe Medical Center
Neurosurgeon:  Dr. Dante Vacca
Surgery:  March 2000
Radiation/ Chemo:  No

Keith
Kulrich29@aol.com
Age:  43
City/State:  Troy,  MI
Type:  Intradural Intramedullary Schwannoma,  L1-L2
Hospital:  Beaumont Hospital,  Royal Oak, MI
Neurosurgeon:  Dr. Ghaus Mallik
Surgery:  December 2002
Radiation/ Chemo:  No

Kelly
pooella@aol.com
Age:  35
City/State:  Ames, IA
Type:  Myxopapillary Ependymoma,  L2
Hospital:  Mary Greely Medical Center
Neurosurgeon: Dr.  K. Douglas Green
Surgery:  January 2000
Radiation/ Chemo:  No

Kenny
kjrichard3@gmail.com
Age of surgery:  23
City/State: Harwinton, CT
Type: Intramedullary Lipoma T-8 to L-1
Hospital: UConn Health Center
Neurosurgeon: Dr. Ahmed Khan
Surgery Date: Semptember 2003
Radiation/ Chemo:  No

Kent
kdavis159@knology.net
Age:  48
City/State:  Augusta, GA
Type:  Intramedullary Ependymoma,  T6
Hospital:  University Hospital, Augusta, GA
Neurosurgeon:  Dr. Robert Abramson
Surgery:  June 1999
Radiation / Chemo:  No

Kim
kimjewell64@hotmail.com
Age:  39
City/State:  Mayhill, NM
Type:  Intramedullary Ependymoma, T7
Hospital:  Boulder Community Hospital, Boulder, CO
Neurosurgeon:  Dr. Jeffrey Thramann
Surgery:  February 2003
Radiation/ Chemo:  Yes - Cyberknife


Kimberly
Email:  Not listed
Age:  27
City/State:  Washington, DC
Type:  Astrocytoma,  T8  T10
Hospital:  Beth Israel Medical Center,  NYC
Neurosurgeon:  Dr. Fred Epstein
Surgery:  2000
Radiation/ Chemo:  No

Kris
kjohn95402@aol.com
Age:  34
City/State:  Boca Raton, FL
Type:  not listed
Hospital:  Boca Raton Community Hosital
Neurosurgeon:  Dr. David P. Sacha
Surgery:  September 2000
Radiation:  No

Leah
leahhimmelfarb@hotmail.com
Age:  26
City/State:  Toronto, Ontario
Type:  Schwanoma, C2
Hospital:  St. Michaels Hospital, Toronto
Neurosurgeon:  Dr. W. Tucker
Surgery:  July 2000
Radiation:  No

Leonard
d.rihl@att.net 
Age at surgery:  53
City/State:  Plain City (Columbus), Ohio
Type:  T4 intramedullary ependymona, low-grade cancerous
Hospital:  Riverside Methodist Hospital
Neurosurgeon:  Dr. Mark Hnilica
Surgery:  1/20/04, total resection of tumor and laminectomy
Radiation/ Chemo:  Yes - Radiation

Lisa
lschreiber11566@yahoo.com
Age of surgery:  52
City/State:  Merrick, New York
Type: Astrocytoma, C2 - T7
Hospital:  Beth Israel Hospital
Neurosurgeon:  Dr. George Jallo
Surgery:  2002
Radiation:  No

Louis
Email:  leib@netscape.com
Age:  50
City/State:  Baltimore, MD
Type:  Ependymoma,  C1 - C2
Hospital:  Johns Hopkins
Neurosurgeon: Dr. Henry Brem
Surgery:  1988
Radiation/ Chemo:  Yes - Radiation

Lynne
tanmac@pei.sympatico.ca
Age at surgery:  40
City/State:  Summerside, Prince Edward Island
Type:  Intramedullary Subependymoma-C3-T2
Hospital:  Moncton City Hospital, New Brunswick
Neurosurgeon:  Dr. Peter Gorman
Surgery:  June 2007
Radiation or Chemo: No

Mary
knottsm1@knology.net
Age:  45
City/State:  Madison, AL
Type:  Myxopapillary Ependymoma,  T8 - L5
Hospital:  St. Vincent's Hospital, Indianapolis, IN
Neurosurgeon::  Daniel Cooper MD & Henry Feuer MD
Surgery:  1986
Radiation/ Chemo: Yes - Radiation

Michelle
mdpanneton@hotmail.com
Age: 31
City/State:  Houston, TX
Type:  Ependymoma,  C2 - C6
Hospital: Beth Israel Medical Center, NY
Neurosurgeon: Dr. Fred Epstein
Surgery:   August 2001
Radiation:  No

Mindy
MindyB55@aol.com
Age:  46
City/State:  York, PA
Type:  Ependymoma,  C7 - T1
Hospital:  York Hospital, York, PA
Neurosurgeon:  Dr. Arnold Salotto
Surgery:  October 2000
Radiation/ Chemo:  No

Missy
missy.mandel@rogers.com
Age:  36
City/State:  Toronto, Canada
Type:  Ependymoma,  C1 - C2
Hospital:  Toronto Western
Neurosurgeon:  Dr. Charles Tator
Surgery:  January 28th, 2002
Radiation/ Chemo:  No

Nickola
nickola@fastmail.fm
Age at surgergy   41
City/State: Taichung, Taiwan and Seattle, Washington
Type: Ependymoma, C3 - C6
Hospital:  Johns Hopkins University Hospital
Neurosurgeon:  George Jallo, MD
Surgery:  July 2005
Radiation/ Chemo:  No

Pam
Email:  Not listed
Age:  47
City/State:  Knoxville, TN
Type:  Not listed
Hospital:  Park West, Knoxville, TN
Neurosurgeon:  Not listed
Surgery:  1989
Radiation/ Chemo:  No

Pat
psdirector2003@hotmail.com
Age:  47
City/State:  Columbus, OH
Type:  Schwannoma,  T - 12,  L1 - L3
Hospital:  Riverside Methodist, Columbus, OH
Neurosurgeon:  Dr. Michael Meagher
Surgery:  February 2001
Radiation/ Chemo:  No

Patricia
patriciascardina@yahoo.com
Age: 38
City/State: Raleigh, NC
Type: ependymoma C 1- C 4
Hospital: Duke Spine Center, Raleigh, NC
Neurosurgeon: Dr. Alan Friedman
Surgery Date: Oct. 5th, 2007
Radiation/Chemo: No

Paul
plgbear@msn.com
Age: 55
City:  Holliston, Massachusetts
Type: Arachnoid Cysts C6-T2
Hospital: Mass General Hospital, Boston MA
Surgeon: Dr. Lawrence Borges
Surgery: 5/31/07
Radiation/ Chemo: No

Paul
pdrenkow@aol.com
Age:  60
City:  Ann Arbor, MI
Type: Intramedullary Ependymoma,  C6 - T1 with cyst
Hospital:  U of M Hospital, MI & Barrow Neurological Inst., AZ.
Neurosurgeon:  Dr. Julian Hoff  & Dr. Robert Spetzler
Surgery:  October 2001 & September 2002
Radiation/ Chemo:  Yes - Radiation

Phyllis
pgblackmar@aol.com
Age at surgery:  47
City:  Vancouver, WA
Type:  Intramedullary Ependymoma,  C5
Hospital:  Southwest Washington Medical Center, Vancouver, WA
Neurosurgeon  Dr. Jay Miller:
Surgery:  1995
Radiation/  Chemo:  No

Richard
richard.smith9@us.army.mil
Age:  38
City/State:  FT Riley KS
Type:  T8-9  Intramedullary Spinal Cord Abscess
Hospital:  Walter Reed Army Medical Center
Neurosurgeon: LTC DR James Ecklund
Surgery: Mar 2003
Radiation/ Chemo:  No

Rob
Roberttlairdjr@yahoo.com
Age of surgery:  31
City/State:   North Plainfield, NJ
Type:  Ependymoma, C4-C5
Hospital:  Robert Wood Johnson Hospital, NJ
Neurosurgeon:  Dr. Richard Lehman
Surgery:  July 2006
Radiation/Chemo:  No

Robert
rgardner@telecareconnections.com
Age: 64
City/State: Matawan NJ.
Type: Rare tropical tumor -Thoratic area
Hospital: Hackensack hospital Hackensack N.J.
Neurosurgeon: unavailable, Orthopedic Surgeon: Dr Ram Setia.
Surgery: January 1975
Chem/Radiation: Colbart treatments - about three weeks

Robert
robert@heathinternet.net
Age of surgery:  46
City/State: Dallas, Texas
Type: Intradural Ependymoma L2
Hospital:  Zale Lipshy Hospital
Neurosurgeon:  Dr. Kevin Morrill
Surgery: March 2007
Radiation/ Chemo: No

Ruby
rmccormick@lamar.com
Age:  33
City:  Erie, PA
Type:  Myxopappillary Ependymoma, L2 - L5
Hospital:  Hamot Hospital, Erie, PA
Neurosurgeon:  Dr. Daniel Loesche
Surgery:  December 1998
Radiation/ Chemo:  No

Scott
ato73@aol.com
Age:  50
City/State:  LaCross, WI
Type:  Ependymoma,  C1 - C2
Hospital:  Beth Israel Medical Center, NY
Neurosurgeon:  Dr. Fred Epstein
Surgery:  October 1996
Radiation/ Chemo:  No

Shannon
shannanhogan@yahoo.com
Age:  34 years (17 years at first surgery)
City/State:  Thunder Bay, Ontario Canada
Type:  Intramedullary Ependymoma, T9-S3
Hospital:  McKellar General, Thunder Bay Regional Health Sciences Centre
Neurosurgeon:  Dr. Iftikharul Haq, Dr. Anup Chaudhuri 1990
Surgery:  March 1990, May 2007
Radiation/Chemo:  6 weeks radiation treatment in 1990

Sheila
keenfamily1@juno.com
Age:  37
City/State:  Spokane, WA
Type:  Intradural Ependymoma,  C7 - T1
Hospital:  Beth Israel Medical Center, NYC
Neurosurgeon:  Dr. George Jallo
Surgery:  May 2003
Radiation/ Chemo:  Yes

Sixto
cwodj@yahoo.com
Age: 50
Country:  Puerto Rico
Type: Shwannoma, T12-L1
Hospital: San Pablo Hospital at Bayaman, Pureto Rico
Neurosurgeon:  DR J.E. Rosado
Surgery: October 2004
Radiation/Chemo: No

Skye
gullah@gullahtexas.com
Age:  47
City/State:  Houston, TX
Type:  Intramedullary Ependymoma, T8 - T10
Hospital:  Methodist Hospital, Houston, TX
Neurosurgeon:  Dr. David Baskin
Surgery:  1997
Radiation/ Chemo:  No

Sonja
RedWalkin@aol.com
Age of surgery:  31
City/State:  Sacramento, CA
Type:  Ependymoma,  C3-T1
Hospital:  Sutter Memorial hospital, Sacramento, CA
Neurosurgeon:  Dr. Michael Edwards
Surgery:  1995
Radition/ Chemo:  Yes - Radiation

Steve H.
stevenshall@cox.net
Age:  46
City/State:  San Diego, CA
Type:  Myxopappily Ependymoma,  T 12 - L2
Hospital:  UCSD Medical Center
Neurosurgeon:  Dr. David Barba
Surgery:  July 2000
Radiation/ Chemo:  No

Steve V.
swviss@comporium.net
Age: 41
City/State: Fort Mill, South Carolina
Type: Intradural Schwannoma, L4 - L5
Hospital: Piedmont Hospital - Rock Hill, SC
Neurosurgeon: Dr. Michael A. Cowan
Surgery: October 6 and October 22, 2004
Radiation/ Chemo: No

Susan M.
smatteso@msn.com
Age: 34
City/State: La Plata, MD
Type:  Giant cell tumor,  L-1
Hospital:  Georgetown University Hospital,
Neurosurgeon:  Dr. Alan Aaron ( Orthopaedic Oncologist )
Surgery:  October 1996 and February 1999
Radiation/ Chemo:  Yes - Radiation

Susan
chuuup@cox.net
Age:  43
City/State:  Virginia Beach, VA
Type:  Intradural Lipoma,  T7 - T9
Hospital:  Norfolk General Hospital, VA
Neurosurgeon:  Dr. Singh
Surgery:  May 2002
Radiation/ Chemo:  No

Tammy
tdgarrett@telus.net
Age: 33 1st surgery/37 2nd surgery
City/State:  Courtenay, British Columbia, Canada
Type:  myxopapillary ependymomam T2 - T9, S1
Hospital:  John Hopkins, Baltimore, MD
Neurosurgeon:  Dr. Michael Boyd- 1st /Dr. George Jallo - 2nd Surgery
Surgery:  2004 1st surgery/2009 2nd surgery
Radiation:  Yes

Terence
terencenoonan@yahoo.com
Age: 31
City/State:  Long Island, NY
Type:  Ependymoma, C3-C6
Hospital:  Montefiore Medical Center, Bronx NY
Neurosurgeon:  Dr. Rick Abbott
Surgery:  3\2009
Radiation:  No

Tim
timtam@san.rr.com
Age: 33
City/State: San Diego, CA
Type: Myxopapillary Ependymoma, lower thorasic & lower lumbar
Hospital: Grossmont Hospital & Palomar Medical Center
Neurosurgeon: Dr. Hertzel Soumekh & Thomas Marcisz
Surgery: January 1990 & February 2000
Radiation/ Chemo: Yes

Tony R
WARUTHEY@webtv.net
Age: 72
City/State: Moline, IL
Type: Intramedullary Ependymoma, C3 - C4
Hospital: Iowa City Hospital, Iowa
Neurosurgeon: Dr. Hitchon
Surgery: July 1998
Chemo or Radiation: None

Tony M
Tmasgio@hotmail.com    
Age:  35
City/State: St. Louis,MO
Type:  Intrameduallary Ependymoma, C3 – C6
Hospital:  Barnes Jewish-Hospital- St. Louis,Mo         
Neurosurgeon:  Dr. Neill Wright
Surgery:  April ‘07
Radiation/ Chemo: Yes

Uta
Email:  Not listed
Age:  30
City/State:  Cincinnati,  OH
Type:  Sub-Ependymoma,  T12 - L1
Hospital:  Christ Hospital
Neurosurgeon: Dr. William Tobler, Mayfield Spine Institute
Surgery:  March 1998
Radiation/ Chemo:  No

Wendy
Sliceman91@cs.com 
Age:  24
City/State:  Clayton, Indiana
Type:  Schwanoma, C1 & C2
Hospital:  St. Vincent-- Indianapolis, Indiana
Neurosurgeon:  Dr. Dean G. Karahalios, MD
Surgery:  February 2004
Radiation/ Chemo:  No

WhiteAngel
whiteangel_0@hotmail.com
Age: 37
City/State: Sydney Australia
Type: Glioma, Astroctoma, C2 - T6
Hospital:  Rolyal Alexandra Childrens Hospital
Neurosurgeon:  Dr. S. Schriver
Surgery:  1970
Radiation/ Chemo: Yes - Radiotherapy

Vickie
vickiebouten@hotmail.com
Age:50
City/State: Bend, Oregon
Type: Swanoma T11-L4
Hospital Wascoe Medical/Bend Memorial
Neurosurgeon: Flemming/Kent Yundt
Surgery: 2003-2006
Radiation/Chemo: No

Van
chevy1@cogeco.ca
Age:  38
City/State:  Belleville, Ontario, Canada
Type:  Ependymoma,  C2 - T9
Hospital:  Kingston General Hospital
Neurosurgeon: Dr. Fraser Saunders
Surgery:  1997
Radiation/ Chemo:  No

We hope you find strength and inspiration from some of the personal stories of our survivors.  Sharing practical information about living well with this challenging disease has helped so many.

There are no two experiences that are exactly the same so please feel free to send an email to anyone with an email link, to seek further information. 

Spinal Cord Tumor Support
Share your experience by submitting your story & profile to:
sctassociation@yahoo.com
Steve
Tom & wife
Nakia
Ruby
Jerald
Cathy & husband
To view a story, use your mouse and Click on a name
Copyright © 2009  Spinal Cord Tumor Association, Inc.



SCTA, Inc. encourages the free sharing of information and ideas between survivors and their families through these pages. We also strive to provide links to medical information through our library and other programs. However, we are not medical professionals. In addition, every person's illness is different. PLEASE consult with your physician before relying on anything you read here to decide on a course of treatment.