SCT Kids
Spinal Cord Tumor Support
SHOLLIN@sbcglobal.net
Age: 13
City/State: Castaic, California
Type: Myxopapillary ependymoma, T12-L2
Hospital: Kaiser Sunset, Los Angeles, CA
Neurosurgeon: Dr. Leslie Cahan
Surgery: June 2002, 2004
Radiation: Yes
HMSuero@aol.com
Age: 5
City/State: Weston, FL
Type: Pilocytic astrocytoma C7-T5
Hospital: Miami Childrens Hospital
Neurosurgeon: Dr. John Ragheb
Surgery: January 2003
Radiation: None
west@viclink.com
Age: 8
City/State: McMinnville, OR
Type: mixed ganglioglioma/astrocytoma
Hospital: Beth Israel Medical Center, NYC
Neurosurgeon: Dr. Karl Kothbauer
Surgery: June 2002
Radiation: none
del.heather@btinternet.com
Age of surgery: 6
Country: England
Type: Benign Juvenile Pilocytic Astrocytoma (grade I) C6T6
Hospital: Great Ormond Street Hospital for sick children, London
Neurosurgeon: Mr Hayward
Surgery: January 2001
Radiation: None
Age: 5
City/State: Atlanta, GA
Type: Intradural Intramedullary Astrocytoma C2-C5 w/ scoliosis
Hospital: The Johns Hopkins, Baltimore Maryland
Neurosurgeon: Dr. George Jallo
Surgery: Pending in the future
Radiation/Chemo: No
mglindsay@sympatico.ca
Age: 4
City/State: Orangeville, Ontario, Canada
Type: Oligodendroglioma, T9 - L1
Hospital: Hospital for Sick Children, Toronto, Ontario
Neurosurgeon: Dr. Robyn Humphreys
Surgery: March 2001
Radiation: None
smarcella65@yahoo.com
Age of surgery: 18 months
City/State: Hanover, MD
Type: Intramedullary Fibrillary Astrocytoma, C3 - T1
Hospital: Children's National Medical Center, Washington, D.C.
Neurosurgeons: Dr. Kimberly Bingaman, Dr. Derek Bruce
Surgery: April 2004
Chemotherapy: Chemotherapy and Radiation
spalbers@charter.net
Age: 7
City/State: Laurens, SC
Type: Benign Juvenile Pilocytic Astrocytoma C3-T1
Hospital: Duke, Durham NC
Neurosurgeons: Dr. John Johnson, Dr. Jeff Wisoff
Surgery: July 2001
Chemotherapy: Yes
jsnyder@inspiramarketing.com
Age of surgery: 2 & 4
City/State: Wilton, CT
Type: Anaplastic Astrocytoma, C2 - T2
Hospital: NYU, New York City
Neurosurgeon: Dr. Jeff Wisoff, Dr. Jeff Allen (neuro-oncologist)
Surgery: November 2002 & September 2004
Chemotherapy: Yes
southernbell3_1@yahoo.com
Age: 14
City/State: Mocksville, NC
Type: Astrocytoma,
Hospital: Forsyth hospital
Neurosurgeon: Dr. William Brown
Surgery: Multiple Surgeries - Aug '95 thru '97
Radiation/Chemo: No
weidner2@email.msn.com
Age: 10
City/State: Columbus, OH
Type: Neurofibroma, L1 - L5, ganglioneuroma, L3 - L5
Hospital: Columbus Children's Hospital, Columbus, OH
Neurosurgeon: Dr. Kosnik
Surgery: 1994 and 1996
Radiation: None
s-o-hegg@frisurf.no
Age: 8
Country: Norway
Type: Ependymoma, T6 - T12
Hospital: University Hospital of Tromso, Norway
Neurosurgeon: Dr. Tor Ingebrigtsen
Surgery: 12/98, 01/00, 05/00, 06/01
Radiation: None
j.favata@verizon.net
age: 13
City/State: East Hampton, NY
Type: Disseminated Myxopapillary Ependymoma , T10 - S3
Hospital: Schneider Children's Hospital
Neurosurgeon: Dr. Steven J. Schneider
Surgery: February 1999 & June 2002
Radiation: Radiation & Chemotherapy
mlhayes@fs.fed.us
Age: 12
City/State: Hood River, OR
Type: Pilocytic Astrocytoma T7-T12
Hospital: Doernbecher Childrens Hospital, OR
Neurosurgeon: Dr. Piatt & Dr. Seldan
Surgery: May 1998, October 2001, July 2003
Chemotherapy: Yes
deb122459@yahoo.com
Age: 25
City/State:
Type: Lipoma, C1 - C7
Hospital: Albany Med. Ctr., Albany, NY
Neurosurgeon: Dr. Emmerich
Surgery: 2 months after birth, 2nd surgery 1993
Chemotherapy: None
deweypt@verizon.net
Age of surgery: 14
City/State: Herndon,Virginia
Type: Intramedullary Ependymoma, C1 - T7
Hospital: Georgetown University Hospital, Washington, DC
Neurosurgeon: Dr. Fraser Henderson
Surgery: June 2003
Radiation: None
FJenifr@aol.com
Age: 2
City/State: Alto Michigan
Type: Ganglioma C2-C7
Hospital: Devos children's hospital
Neurosurgeon: Dr. Stanley Skarli pediatric neuro surgeon
Surgery: August 2007
Radiation/Chemo: No
phylscircus2@aol.com
Age of surgery: 8 1/7/2000
City/State: Brentwood, New York
Type: Glioblastoma/Anaplastic Oligo
Hospital: Winthrop University
Neurosurgeon: Mark Mittler
Surgery: January 2000
Radiation: Yes
For a parent, the diagnosis of their child’s spinal cord tumor is devastating. Dealing with the overwhelming fears and the uncertainties of such an illness can be alleviated in the company of other families who have been through a similar set of circumstances. Only another parent can understand what you are going through, and their experiences may be enlightening, and will offer the much needed support, information and comfort you require.
Copyright © 2009 Spinal Cord Tumor Association, Inc.
Share your child's experience by submitting their story and profile to:
sctassociation@yahoo.com
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SCTA, Inc. encourages the free sharing of information and ideas between survivors and their families through these pages. We also strive to provide links to medical information through our library and other programs. However, we are not medical professionals. In addition, every person's illness is different. PLEASE consult with your physician before relying on anything you read here to decide on a course of treatment.
